Month: December 2022

My Illness Does Not Define Me

Posted on by Wendy Kennar

“My illness does not define me.” 

I recently came across that statement in The Healing Journal: Guided Prompts and Inspiration for Life with Illness by Emily Suñez.

I’ve read that sentence before — in other books, in other posts. For some reason, though, when I read it this time, I really lingered on that page. I just couldn’t stop thinking of those words and what they mean. Maybe it’s because we’re in this in-between time of reflecting on a year that is rapidly coming to an end while daring to look ahead with hope to the new year. 

“My illness does not define me.” 

It’s true. I don’t think anyone who knows me well would use words like ill or disabled to describe me. And that’s probably because I spend an awful lot of energy trying to act like my illness is not front and center in my life. 

But, I don’t think that’s particularly helpful either. I try to ignore my autoimmune disease, push it aside and out of the way. But it’s still there, demanding attention, and though I don’t often admit it, it’s also demanding compassion.

I’ve never written that before. 

Probably because, in all honesty, that’s the part I’m just starting to become aware of. 

“My illness does not define me.” 

But it is a big part of me.

Monthly Book Highlights of 2022

Posted on by Wendy Kennar

As we approach the last week-and-a-half of 2022, I find myself reflecting on the year and thinking about the books I have read. As of this post, I have read 50 books this year, though that is short of my Goodreads Reading Challenge of 57 I had optimistically set back in January. 

This week, rather than focus on the books I didn’t read, I’m going to highlight one book from each month of 2022.

January

The first book I finished this year was Claire Cook’s Life Glows On. I felt like I was starting the year on the right foot, reading about creativity — the ways we demonstrate creativity, the reasons why we need to dedicate time and energy to creative endeavors.

February

During the shortest month of the year, I read Moms Don’t Have Time to Have Kids: A Timeless Anthology edited by Zibby Owens. As I wrote in my blog post: “I found myself relating to so many of the authors. The specifics may differ (where we live, how many kids we have, the ages of our kids) but the emotions are universal.”

March

In March, I read First Lady Dr. Jill Biden’s memoir Where the Light Enters: Building a Family, Discovering Myself. I loved reading about Dr. Biden’s passion for teaching, because I know that passion.

April

I picked up Just Haven’t Met You Yet by Sophie Cousens because I wanted a fun, entertaining read. This novel was that, and more. (Which reminds me, I still haven’t read her other novels.)

May

Jane Goodall’s The Book of Hope: A Survival Guide for Trying Times was a powerful book with a powerful message.

June

We’re a basketball family. And while our team will always be the L.A. Clippers, we respect and appreciate many players on many different teams. The “Greek Freak,” aka Giannis Antetokounmpo of the Milwaukee Bucks is one such player, and why I was interested in reading Giannis.

July

Brighter By the Day: Waking Up to New Hopes and Dreams is the third book I have read by Robin Roberts. The book feels like a pep talk Robin Roberts is sharing with you, simply because she believes in you and just wants the best for you.

August

Weather Girl by Rachel Lynn Solomon is much more than a rom-com. Plus, there’s that exciting feeling knowing an author you have recently discovered has written other books you have yet to read.

September

Jean Meltzer’s Mr. Perfect on Paper was such a great read. I love that Ms. Meltzer writes books featuring a protagonist who is not only Jewish, but who also lives with an invisible chronic illness. (Be sure to also check out her first novel, The Matzah Ball, perfect for reading during Hanukkah.)

October

Love and Saffron by Kim Fay was a story told through the letters two women write to each other during the 1960s. I was instantly intrigued because I have a pen pal. We have been exchanging letters for almost thirty years!

November

Book Lovers by Emily Henry is a special book, for a couple of reasons. First, I bought it during our family trip to Maui. And secondly, it earned five stars on my Goodreads review. 

December

Jasmine Guillory’s Royal Holiday was an entertaining holiday romance. It was a fun escape to be able to open the book and slip into this other world.

Readers, feel free to share some of your favorite books that you read during 2022!

Royal Holiday

Posted on by Wendy Kennar

I don’t know about you, but there are times when I just want to briefly escape from reality. Not in an unsafe, drug-induced sort of way. But in a slip-into-someone-else’s-life kind of way. Which is one of the reasons I enjoy reading.

And sometimes, I want to read a book where I know everything is going to work out okay in the end. 

Jasmine Guillory’s Royal Holiday fits that description.

It was a fun, fast read that made me smile on several occasions. 

This passage, while not necessarily one of the most important in the novel, was one that I marked. One I needed to read:

“She shook her head. ‘I don’t know why. Life gets busy, with so many things that aren’t actually important but feel important. And there are plenty of weekend days where I could decide to forget my to-do list, spend a few hours at the beach instead, but I’ve only ever done that if there’s a special occasion.’ She looked at him and smiled again. ‘Life is short. I need to stop waiting for special occasions in order to treat myself.’”

And there was this:

“Vivian drove up to her house and smiled at the bouquet of yellow and orange and pink flowers in the passenger seat of her car. Their bright colors had cheered her up immediately when she’d seen them in the grocery store, and she’d bought them on an impulse. Why didn’t she ever buy flowers for herself? Just looking at them made her feel content and helped reassure her that no matter how much it rained, spring would come.” 

Readers, have you read Royal Holiday? Or any of Jasmine Guillory’s novels?

Tough, and Tired

Posted on by Wendy Kennar

“How long has your leg been hurting?” the technician asked me.

“Years,” I told her.

“No, seriously,” she said.

“Yes, seriously. My calf for over ten years. My thigh for a few years now. The last couple of years really bad,” I said.

The technician continued walking down the hallway and didn’t ask any other questions.

I didn’t know how else to answer her. I wasn’t getting an MRI because of an isolated incident, like a sports injury or something along those lines. I was getting an MRI because the pain in my left leg is no longer limited to my calf. The pain now extends to my left thigh. 

If you follow me on Instagram (@wendykennar), you may remember I posted a picture from an MRI a little more than a month ago. That MRI only looked at my left calf and knee. Apparently, my calf looked okay (whatever that means), but my knee is in bad shape. 

The scan hadn’t looked at my thigh, though the pain was there as well. At my follow-up appointment, my rheumatologist did some strength tests on my thigh. She pressed and squeezed. Everything hurt, and the left thigh is definitely not as strong as the right. This, apparently, was the evidence she needed to order the MRI of my femur.

It’s not easy living with a chronic illness; a chronic illness that causes chronic pain. And it’s really not easy to advocate for myself. But that’s what I had to do in the form of several emails before the appointment with my doctor. I had to keep asking for this second MRI; after, of course, I politely expressed my displeasure that the first MRI hadn’t included my entire left leg. 

My pain has intensified and spread. I told my doctor I was experiencing more difficulty in my daily tasks —getting in and out of the car, climbing the stairs at home, making dinner. I was struggling just to make it through the day. 

I am taking more medication than ever before and not feeling any better.

I’m not one to complain. In fact, I have often been described as tough and stoic. But really, I don’t know how much longer I can put on the brave face. I hurt. And it’s utterly exhausting to hurt this much and not feel like anyone is doing anything to help me feel better.

And now all I can do is wait. Wait to see if the MRI provides us with any answers about why the pain has worsened and spread. If so, this might mean a change in my treatment plan. Or, as tends to happen with me and medical tests, results come back in that “okay-enough” gray area. And then we’re left with trying to make guesses about where we go from here and what we try next.