“It still isn’t easy for me to describe myself as a disabled woman. For a long time I didn’t think a disabled woman sat on the ground pulling out weeds. Or played handball with her son. Or helped her elderly neighbor carry in groceries. But I do all those things. Because being a disabled woman doesn’t look the same for every woman. And it doesn’t look the same for me each day.”
That paragraph is taken from “It’s Not All in the Family,” a personal essay I wrote that was published in the fall issue of Breath and Shadow. You can read the essay by clicking here.
(Check out my Published Work page to be re-directed to some of my published A to Z Lists including “The A to Z List of Verbs Teachers and Students Practice Daily,” “The Alphabetical Prescription for Living with a Chronic Medical Condition,” and “The A to Z List of Boys,” to name just a few.)
A novel written entirely in list form. And through these lists the reader learns about Dan – a former teacher, current bookshop owner, a husband, and soon-to-be dad.
These lists are honest. Charming. Amusing. Authentic.
Here are just a few tidbits from the book’s lists I’d like to share with you this week:
“Reasons I quit teaching
– Couldn’t continue to witness bad decisions at the expense of children
– Couldn’t stand one more minute of professional development that was neither professional nor developmental”
“My teaching beliefs
– Teachers must be reading and writing on a regular basis in order to be effective teachers of reading and writing.
– Teachers must think of parents as full and equal partners in the eduction of the child.
– The most important lessons taught by teachers often have little or nothing to do with academics.”
“Words that belong on a child’s T-shirt
– Are you really going to rob me of my precious childhood with this meaningless worksheet?”
“21 Truths About Love
– To truly love someone, you must love the person you never knew, the person you know today, and the person that will someday be.
– Love does not make everything better, but it makes everything a little easier.
– ‘I love you’ are three simple words that we whisper to lovers in the dark, say to dogs that don’t speak English, cry out during sex, speak to the dead while standing over their gravestones, tell parents before hanging up the phone, and repeat again and again to the people whose lives are gloriously intertwined with our own.
– Love makes you do the stupidest, bravest, most ridiculous and idiotic things in your life. It makes you scared and crazy and crazed and joyous. Love is all the feelings.”
Let me begin by saying I write these weekly blog posts in advance. You receive them in your inbox each Wednesday morning, but I write them before Wednesday.
Which means what you’re reading today has been written before the results of the United States election were made available.
So I don’t know what this morning looks like. I don’t know what the election results show.
But I’m hopeful.
And really, with so much uncertainty in the world, that’s all anyone can really do. Begin each day hopeful. Begin each day with the awareness and recognition that, no matter what, each day is a gift.
Hanging in my bathroom, I have a small, framed piece of art created by Flavia Weedn. It is a reminder to appreciate each day as a precious gift. It is a reminder that each day is a promise of beauty and grace and wonder and magic.
A virtual appointment with a neurologist, a man I have never met before. This was a doctor my rheumatologist and my neurologist both hold in high regard and wanted me to meet with. For a second opinion, for a different perspective, for a new set of eyes to look at me, my medical history, my test results.
He asked questions, I answered. He looked at my legs over a screen. He asked me to stand and sit and squat and tip toe and balance on one foot. Some things I could do, some I couldn’t.
And after all that, this doctor looked at me across a screen and said, “It’s strange.” (In all fairness, this doctor did refer to my symptoms and labs as strange rather than me.)
I momentarily bit my lip and replied, “I’ve heard worse. Usually I hear the word ‘weird.’ “
This doctor chuckled and said, “Weird works.”
And then I finally did it. I finally had an answer for a doctor in the moment.
“No, weird doesn’t work,” I began. “Because nobody knows what to do with weird. No one knows how to treat weird. No one knows how to help weird.”
A thirty-minute initial consultation with no answers. The doctor needs more time to review my medical history. I need to contact him after an upcoming ultrasound, and then we’ll set up an in-person visit for him to look at and touch my leg.
In the meanwhile, I’m left feeling despondent.
And still with pain in my leg.
You can click here to read “The Hard Realities I’ve Faced After My Doctor Told Me, ‘You’re Just Weird’ “ back in 2018.
I’ve wanted to add this impressive book to my library since I first read about it and then saw it in my local Barnes and Noble.
But – the book was $50. It was big and heavy. It took up a lot of space.
All that was true. And still true.
Except for the $50. I found the book on sale, and being the bargain-shopper I am, bought myself a well-deserved present.
But then Mr. Souza’s book arrived, protectively wrapped in cellophane, and I hesitated to open it.
I didn’t want to devour the book all at once. I wanted to savor it, the way my husband and I used to leisurely share a chocolate soufflé at our favorite French restaurant.
So that’s what I did.
Over the course of the last few months, I’ve looked at a few pages at a time. Many were images I had never seen before. Many were images that just made me thankful this man and his family were living in the White House when my son was born. In fact, my twelve-year-old son and I looked at most of the book together.
This is a book that will remain in our family for generations to come.
This is a book of proof – we, as a country, are capable of “this” – opportunity, diversity, acceptance, respect, greatness.
“I had spent close to two hours, sitting outside at my favorite coffee shop, writing. It was my idea of a perfect morning. As I walked the block-and-a-half to my car, I had a nagging feeling I had forgotten something. I paused on the sidewalk and checked my bag. Keys, glasses, wallet, laptop, file of papers. Everything was there, but still I felt something was missing. I took a few more steps, and abruptly stopped on the sidewalk.
I knew what it was.
Pain was missing.
I wasn’t hurting.
It was a jarring feeling. The absence of pain. But instead of feeling euphoric, I felt intensely sad.
I walked to the car in shock.
This is what it feels like not to be in pain. This is how other people usually feel. This is how I used to feel.
I had forgotten what it felt like not to be in pain.”
The passage above is taken from my recently published personal essay, A Painful Reminder. By clicking here, you can read the entire essay online in issue 81 of Kaleidoscope: A Season of Hope.
You can read the book, watch the film, and learn the facts.But here are a few things that are staying with me:
This woman doesn’t stop.No matter what.Two bouts with cancer.The death of her husband.She still keeps going, keeps fighting.Going to work, fighting for equality.
Looks can be deceiving.Upon first glance, you may think RBG is just a small little woman.Don’t be fooled.She’s powerful in mind, body, and spirit.(The woman works out with a personal trainer twice a week.)
Theirs was a beautiful marriage, a union of true partners.(RBG’s husband, Marty, passed away in 2010. They were married for 56 years and knew each other for 60.)
RBG always sees the bigger picture:“I think gender discrimination is bad for everyone, it’s bad for men, it’s bad for children.Having the opportunity to be part of that change is tremendously satisfying.Think of how the Constitution begins.‘We the people of the united States in order to form a perfect union.’But we’re still striving for that more perfect union.And one of the perfections is for the ‘we the people’ to include an ever enlarged group.”
One of my favorite fiction authors is Katherine Center. I eagerly await her books. But then a funny thing happens. Once I buy her newest book, I hesitate to start reading it. Because once I start reading, it’s hard to stop. And if I read too quickly, I’ll finish the book too quickly.
Ms. Center’s latest novel, What You Wish For,was no different. It made me smile. It made me laugh. It made me cry. It made me bite my lip. And it made me look up George Michael’s “Freedom! ‘90,” and play the sample on the iTunes store. (page 234, if you’re curious)
This week, allow me to share some of my favorite passages with you:
“Joy is an antidote to fear. To anger. To boredom. To sorrow.” “But you just can’t decide to feel joyful.” “True. But you can decide to do something joyful. You can hug somebody. Or crank up the radio. Or watch a funny movie. Or tickle somebody. Or lip-synch your favorite song. Or buy the person behind you at Starbucks a coffee. Or wear a flower hat to work.”
You really have to read the description of the school library (page 107) to become fully enchanted, but meanwhile I’ll share this bit with you:
“I wanted to make sure that if kids felt an impulse at any moment to pop by the library, there’d be nothing to stop them. It was the best way I knew to turn them into readers: to catch those little sparks when they happened and turn them into flames.”
“I’m not happy because it comes easily to me. I bite and scratch and claw my way toward happiness every day.” “It’s a choice. A choice to value the good things that matter. A choice to rise above everything that could pull you down. A choice to look misery right in the eyes … and then give it the finger.” “It’s a deliberate kind of joy. It’s a conscious kind of joy. It’s joy on purpose.” “I’m telling you. I know all about darkness. That’s why I am so hell-bent, every damn day, on looking for the light.”
“Life doesn’t ever give you what you want just the way you want it. Life doesn’t ever make things easy. How dare you demand that happiness should be yours without any sacrifice – without any courage? What an incredibly spoiled idea – that anything should come easy? Love makes you better because it’s hard. Taking risks makes you better because it’s terrifying. That’s how it works. You’ll never get anything that matters without earning it. And even what you get, you won’t get to keep. Joy is fleeting. Nothing lasts. That’s exactly what courage is. Knowing all that going in – and going in anyway.”