One year ago, my family and I were in Maui. (If you missed it, you can read my post about our fantastic trip by clicking here. My son took this photo during our zip lining adventure.)

This year, we’re in the almost-done-planning stage of our summer trip, happening later this summer. (I’ll be writing about this summer’s trip in a blog post next month. Stay tuned!)

If I’m being honest, I do have to admit that I am a bit worried.

The truth is I’m very good at keeping it all together, of making my life, my family’s life, look like everything is under control. Because it is — in many ways. But I’m also dealing with incredible amounts of daily pain. I’m trying to get through my days while struggling with high levels of fatigue, unexpected muscle twitches, and knees that make bending painful.

Will I come home feeling more intense pain than I did before the trip? Maybe. But also, maybe not. 

Will I have hours during our trip when my left leg will feel wobbly and shaky like Jello on a dessert plate? Maybe, but maybe not. 

Two family members have voiced their concerns about the trip. “Won’t it be too much for you?” I was asked.

“Probably,” I answered.

But we’re still going. I am not going to let my chronic illness stop me.