My Mind Is Full

I had a “difficult” doctor’s appointment last week. 

Actually, I’m not sure difficult is the right word. 

Let me set the stage:

This was my three-month check-in. Basically, because of the medications I take, I need blood drawn every few months. Though I had a 9:00 am appointment, with an 8:45 check-in, my rheumatologist was running late. 

The doctor asked some general questions, but I had come in with a list of concerns and some questions of my own. 

I told my doctor about my fatigue, about waking up feeling unrested regardless of what time I go to sleep and how many wake-ups I have each night. He told me to go to bed earlier and to keep the same sleep schedule seven days a week. I told him neither one was going to happen. (Why wake up at 6:00 am on a Sunday when we have nowhere we need to be at a specific time?)

I told my doctor about the pain. The pain that I carry around every single day. The pain that slows me down, weighs me down, and often makes me feel like I’ve got a wad of gum stuck to the bottom of my shoe, making it difficult for me to walk as effortlessly or as quickly as I would like. 

I also told my doctor about my physical therapy and the progress my physical therapist says I’m making. 

“He says my endurance has improved since we’ve been working together,” I told my rheumatologist. 

“I go for a daily walk, and I use my pedal machine twice a day now,” I said proudly.

“What are you doing while you’re pedaling?” he asked.

“I read, usually. But sometimes I listen to a podcast or watch something on YouTube,” I said.

“You need to stop multi-tasking,” he said. (You may remember my blog post from January, when I wrote about my doctor’s appointment then and Dr. P’s unhelpful suggestions.)

“You need to really focus in on your leg,” he continued. 

I looked at him. Bit my tongue behind my mask. 

He continued, speaking of the increased benefits I would experience if only I would do less, if only I would really “zero in” on my knee and my calf. 

“I think most families multi-task. I don’t know how to get through my day without multi-tasking,” I said.

I went on. “When I go for my walks, I’m not listening to anything. No AirPods in my ears. I’m just walking and staying focused on my surroundings. But at home, I feel safe in reading or listening or watching something while I pedal,” I said.

“You’re not getting the full benefits you could be getting when you do that,” he said.

“Actually, my physical therapist always talks with me when I’m on the treadmill. He said it helps to be distracted, it makes the time go by faster,” I said.

I tried again. “I am in some level of pain every day, all day. I don’t need to be any more focused in on the pain. In fact, I need a break from it. Reading a book gives me a temporary escape,” I explained.

Ultimately it didn’t matter what I said. Dr. P might be pleasant enough, asking about my family, wishing me a good holiday season. But the fact of the matter is he doesn’t get it. Because he’s not living with pain like I am. 

The appointment left me feeling dismissed and blamed. Like the reason I feel as lousy as I do is because I refuse to go to bed at 9:00 pm, or wake up at 6:00 am, or stop reading my novel while pedaling for nine minutes at a time. 

Even if I did those things, he and I both know my pain wouldn’t magically disappear. 

Daily pain is a fact of life for me. No need to concentrate on that sad fact any more than I already do.

To my chronic illness friends – have any of you had a similar experience? Are your doctors talking to you about multitasking and/or mindfulness? Feel free to share in the comments.

As a side note — the appointment made me think back to an essay I wrote several years ago titled, “This Is What ‘Mindfulness’ Looks Like To Me.” I encourage you to check it out. I’d love to know your thoughts about mindfulness.

 

Braided

I am not a baker. Meaning, I’m not a multiple-ingredients, multi-step-recipe kind of baker.

I’m more a Ghirardelli-Dark-Chocolate-Brownie-Mix (which only requires three ingredients) type of baker. 

However, I was so intrigued by the premise of Braided: A Journey of a Thousand Challahs by Beth Ricanati, MD. (And I was tickled to learn that before her challah-baking, Ms. Ricanati counted her brownies, made from a Ghirardelli brownie mix, as her specialty.)

Here’s part of the description from the back cover:

What if you could bake bread once a week, every week? And what if the act of making bread — mixing and kneading, watching and waiting — could heal your sense of being overwhelmed? It can. This is the surprise that physician-mother Beth Ricanati learned when she started baking challah: that simply stopping and baking bread was the best medicine she could prescribe for women in a fast-paced world.”

And here are some of the passages I marked while reading:

“Actions always speak louder than words: our children absorb and learn by watching us, not necessarily listening to us.”

“This was a big lesson for me. It took making challah again and again to realize that when something goes wrong, it is not always because I did something wrong. ‘Sorry’ used to be one of my favorite words. A guy friend of mine bet me in high school that I couldn’t stop saying sorry. ‘Sorry,’ I replied. Alas, reflexively, I still want to blame myself first, to assume that I must have done something wrong.”

“Waiting for the yeast to proof exercises more than patience. Waiting also exercises humility. It’s the greatest of all character traits, according to the Talmud. Humility supplants the ego, pushes away the tendency for self-centeredness. With humility comes the ability to have empathy.” 

“We can’t always be happy. Sometimes happiness is taken from us. Sometimes terrible things really do go bump in the night. While painting challah with a red-tipped brush may seem childish, may seem frivolous, I look forward to this with almost too much glee. In fact, whenever possible, I insist on doing this step myself, instead of handing it over to a child or a friend or anyone else. I want the reminder. I want the physical reminder that when we have the choice to be happy, we have to grab it. We have to take it and own and cherish it. It is not always ours to choose.”

“I found in making challah that the magic for me is in the process of making challah. No ends-justify-the-means here. What happened as I went through the eleven steps each Friday in this challah recipe is where I really learned to be present. To slow down for a moment each week. To appreciate the here and now. To reconnect with women. I found through these eleven steps that challah is the ultimate soul food for me.
“It was here all the time, I just didn’t see it. I was so concerned with doing the right thing all the time, being the right person at the right time, that I had unknowingly lost the enjoyment, the fabulousness of the here and now.”

Please note: I am including a link to buy the book that I’m highlighting this week. If you use my link, I do make a small commission on your purchase at no additional cost to you. I am working with Bookshop.org which also sends a portion of the profit to support local, independent bookstores.