The Words I Use to Describe My Autoimmune Disease

My son and I playing handball

 

I gained a reputation after teaching for a number of years.  I was kind.  Organized.  Structured.  Calm.  Patient.  Loving.

And even though I’m no longer teaching, those adjectives still apply. 

But there’s another side of me.  The side that is sometimes so frustrated, so beaten-down that I feel like channeling Bill Murray’s character in What About Bob? and letting out a long tirade of curse words.  And while I don’t let myself go to that extreme, it still isn’t easy to deal with daily pain and stay calm. 

Instead, I write about it.

Click here to be re-directed to The Mighty to read my latest personal essay, “The Words I Use to Describe Life With an Autoimmune Disease.”

4 thoughts on “The Words I Use to Describe My Autoimmune Disease

  1. Another honest portrayal of the difficulties of living with an autoimmune disease. I’m sure your writing about it helps others who suffer similarly, feel like they are not alone.

    Like

  2. Wendy,
    Thank you for your courage to speak out. AD could also mean Appearance Deceiving: because we cannot see a person’s pain we assume there is none. Your work helps us to consider all that might lie beyond the superficial.

    Like

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