Everything Happens For a Reason

Back in April 2022, I wrote a blog post about Kate Bowler’s book No Cure For Being Human (And Other Truths I Need to Hear). If you missed it, you can click here to read it. 

I recently finished reading Ms. Bowler’s other book Everything Happens For a Reason (And Other Lies I’ve Loved)

(Just so you know – this book was published in 2018, before No Cure For Being Human.) 

I am in awe of Ms. Bowler — the way she blends truth and humor, tenderness and rawness. 

Let me share just some of the passages that earned sticky notes in my copy:

“I have had two perfect moments in my life. The first was running down the aisle with Toban on our wedding day, and we burst through the church doors and stood, breathless, alone as husband and wife, gazing at each other like complete idiots. And the other was when they put Zach in my arms for the first time and we looked at each other like it was a conspiracy of mutual adoration. These are my Impossible Thoughts. These are my Can’t-Live-Withouts. I cannot picture a world where I am not theirs. Where I am simply gone.”

“When we arrived at the hospital, a day into hard labor that wouldn’t progress, the doctor looked me up and down and suggested that we return home again.
“ ‘You don’t have the look of someone in labor,’ she said matter-of-factly.
“  ‘Yeah, well, you’re going to want to check me. I am, unfortunately, amazing at being miserable.’”

“Infertility and disability should have taught me how to surrender, taught me how little I can control the conditions of my own happiness. Instead, that helplessness has only thickened my resolve to salvage what I can from the wreckage.”

“If I never nap. If I never complain. If I stifle my sharp intake of breath when I feel the pain. If I hide the reality, then maybe I’m not sick. So I continue to work full days. I get up at 6:30 am every day — no matter what — so I won’t miss a moment with my son. When I stop taking the medication that minimizes the numb feeling in my hands and feet, because I want to feel every shred of what is happening to me, my friends practically stage an intervention. When will I realize that surrender is not weakness?”

“But most everyone I meet is dying to make me certain. They want me to know, without a doubt, that there is a hidden logic to this seeming chaos. Even when I was still in the hospital, a neighbor came to the door and told my husband that everything happens for a reason.
“ ‘I’d love to hear it,’ he replied.
“ ‘Pardon?’ she said, startled.
“ ‘The reason my wife is dying,’ he said in that sweet and sour way he has, effectively ending the conversation as the neighbor stammered something and handed him a casserole.”

“There is no life in general. Each day has been a collection of trivial details — little intimacies and jokes and screw-ups and realizations. My problems can’t be solved by those formulas — those clichés — when my life was never generic to begin with. God may be universal, but I am not.”

What do I want to give them? I have taken the notebook back out and scribbled a couple of words.
Compassion.
That one is for Zach. I have always wanted to raise a boy who loves the underdog, who stops for snails, who wants to know why the man outside the car window says he will work for food. I want to raise a tough softy. He will know the pain of the world but all will be better for it. He will be brave in the face of heartbreak.”

And Appendix I, titled “Absolutely Never Say This to People Experiencing Terrible Times: A Short List,” is quite wonderful all on its own. Here are a few gems:

“ ‘Well, at least…’
“Whoa. Hold up there. Were you about to make a comparison? At least it’s not … what? Stage V cancer? Don’t minimize.”

“ ‘God needed an angel.’
“This one takes the cake because (a) it makes God look sadistic and needy and (b) angels are, according to Christian tradition, created from scratch. Not dead people looking for a cameo in Ghost. You see how confusing it is when we just pretend that the deceased return to help you find your car keys or make pottery?”

An Anniversary

Room 7, shortly before I turned in my keys. March 1, 2013

Yesterday, February 28th, was Rare Disease Day.

Today, March 1st, is the start of Autoimmune Disease Awareness Month. It is also an anniversary for me. Ten years ago, March 1st, 2013, was my last day of teaching.

It’s a day with a lot of emotions for me, and the way I try to make sense of my emotions is by writing about them. 

Many of you, my dear readers, may not know that I am writing a memoir-in-essays about my experiences living with an invisible disability. One of my first essays is titled, “The Big Reveal,” and recounts the morning when my husband and I met with my rheumatologist. 

The appointment was set for early morning so I could make it to my fourth grade classroom before the school bell. I took this as a good sign. No doctor would deliver heartbreaking news and then expect me to go teach a roomful of nine and ten-year olds. Whatever he had to tell me couldn’t be that bad.
“That’s what I kept telling myself because that’s what I needed to believe.”

When my rheumatologist finally put a name to my symptoms — Undifferentiated Connective Tissue Disease (UCTD) — my husband and I felt it was the first time we could truly exhale. 

My rheumatologist said something else that morning, something that didn’t quite register at the time. 

It’s rare. No one will know what you’re talking about if you say you have UCTD. So, if you want to walk around and call it ‘The Kennar,’ you can.
“I chuckled. ‘I’ve always dared to be different, so I guess this fits.’
“But since then, I’ve changed my mind. I don’t want a rare condition most people have never heard of. If I’m destined to live with a chronic medical condition, then I’d prefer it to be familiar; a disease doctors understand and know how to treat. Maybe even a disease with its own awareness month or magnetic ribbon I can attach to my car. I didn’t know it at the time, but different, at least when it comes to the world of medicine, isn’t always better.”

You might not see it on any calendar, but Strong Woman Day? 

That’s every day.

Sometimes I Cry

(The tears mean it’s essential to find moments of joy; like this family outing last month to the South Coast Botanic Garden.)

It surprises me, sometimes, the “little” things that make me cry.

Just the other day it was the discovery of a package of panty hose in the back of my dresser drawer. I’m not necessarily sad that I can no longer wear panty hose. (My calf is super sensitive; I can’t wear anything tight around it.) In fact, many women choose not to wear panty hose. But for me, it was more than the panty hose; it was what that panty hose represented — my teaching days. When I was teaching, I either wore slacks or skirts to school, except for field trips and School Spirit Fridays. I found that package of panty hose, and after my initial surprise wore off, I felt the tears running quietly down my face. 

A couple of weeks ago I heard Colbie Caillat’s “Bubbly” on the radio. It’s a fun, definitely-not-sad song. But, it’s also the song I remember describing to my husband as he stood next to my hospital bed. This was back in 2010, when I had been admitted into the hospital after spending hours in the Emergency Room with a swollen left calf and without the ability to stand or walk. My husband was trying to distract me with music, and I asked him about the song that had something to do with “toes and nose.” It was a challenge to find the song, but it was a task he could complete. Something we could have an answer to, in terms of the name of the song and the artist, when so much of our life as a family was without answers the longer I stayed in that hospital bed. So while it is a fun song, it has some powerful memories attached to it.

And sometimes it’s the not-so-little things. Like my nightly showers that seem to make me increasingly weak. Or the trips to the grocery store that most times feel more like an endurance test than a regular chore. Or emptying the dishwasher. Or watering my outside plants. Or getting in and out of the car.

Which is all to say that I have been living with this autoimmune disease of mine for almost 13 years. 

And it hasn’t gotten any easier.

Gardening and Writing

The other day, I spent an hour working in my garden. Pruning, plucking, and even pleading. (Me: “Please don’t eat the plant. It’s not food.” Squirrel: No comment. But it did stop eating and stare at me for a long moment before scampering away.)

While I was marveling at the many plants that are getting closer to blooming, I realized something — gardening and writing have a lot in common.

They both offer the promise of something different — something more, something bigger, something more colorful — than what you started with.

A small green plant with a card sticking out of its moist soil labeling it a kalanchoe. A stack of white printer paper, standing at attention, just waiting for me to type some words on the computer and press print. 

I turn to both of these endeavors with hope and optimism. I water my plants, doing my best to make sure I’m watering a Goldilocks-not-too-much, not-too-little amount. I strive to find just the right spot, with just the right amount of sunlight, for each plant. I trust in the process and hope I’ve done all I can so my kalanchoe will bloom its yellow flowers. Likewise, I open up a new Pages document on my computer and begin. I only have twenty-six letters to work with, but, again, I trust in the process. I’ve done this before. Just get something down — a word, a vague idea, a quote. Something to get me writing, and keep me writing.

And then you see it start to happen. The plant looks a little taller, a bit fuller with more leaves. A tiny bud appears. The screen on the computer is no longer full of ramblings. I’ve found the line that I was writing my way to. The line that leads to a paragraph, which leads to multiple paragraphs and multiple pages.

But it’s not done yet. My kalanchoe does bloom its small, happy yellow flowers. And I continue showing my plants love, in the form of my pruning and plucking. So, too, it is with writing. After I have printed several pages of my personal essay, I know I’m not done. My pages need some love, too. I review, revise, and rewrite.

Of course there are others involved. All the people responsible for getting my plants to the garden store. My husband for being my personal I.T. person. 

But in the end, I did it. 

I pause and savor and appreciate. 

Then I do it all again. 

Lollipop Trees

“I had painted ‘lollipop trees.’ At least that’s what my elementary school teacher said.

“Our assignment was to paint watercolor landscapes. I painted trees with round tops, modeled after the pruned trees I saw as I walked to school each morning. I liked my painting; my teacher did not. She said my trees looked like lollipop trees; that they didn’t look like real trees, although they looked like the trees I knew.

“Mrs. E picked up a paintbrush and painted over my trees to make them look the way she thought trees should look.

“For the rest of my school years, I never voluntarily took an art class.” 

Those words are taken from a piece I wrote that was published in the Christian Science Monitor back in 2004. 

I thought of that essay the other day while on a walk. I am supposed to keep moving and not let my pain stop me from walking each day. So I try. I park the car near my son’s high school with plenty of time before the dismissal bell rings, so I can take a leisurely walk in the surrounding neighborhood. 

The other day I noticed the tree in the photograph above. And that’s when I thought back to my “lollipop trees” and this essay.

You can read my essay, “Too often, teachers extinguish a student’s spark,” by clicking here.

Write On, Sisters!

Write On, Sisters!: Voice, Courage, and Claiming Your Place at the Table by Brooke Warner is more than a writing book. It’s also a look into the uneven playing field that women encounter in most careers and fields. It’s a close-up look at the ways in which women often hold themselves back, and not just when it comes to writing. 

I’ll be honest — the first half of the book has a lot of statistics and was rather slow reading for me. But the second half of the book has quite a few nuggets that were worthy of my sticky notes.

Here are a few:

“Writing is self-expression, and as such, when we write we give voice to what we think, what we care about, and who we are. When we read a book —or even a post —we take a walk inside the innermost recesses of the author’s mind, welcomed into a place so private that the words we read on the page may be words the author has never uttered aloud. How powerful — and intimate — is that?”

“To put your voice out into the world is to both believe and demand that what you have to say matters. We are our best selves when we assert our independence and self-reliance, our strength and toughness. The very qualities our culture values least in women are the ones women need to succeed.”

“… you don’t need to heed warnings from the jaded that failure is imminent or inevitable. It is. The work is in getting back up on the horse, rising from the fall, and the way you handle the fall.”

“Few events are more life-changing and soul-affirming than offering up your work in the form of a published book. The act of creating a story, honing your words into a message that matters to readers, or honoring your truth by recording your experience in memoir form is a way of telling the world, I am here. I have something to say. I have something to impart. I want to share with you a story, a message, a truth. You are passing feelings from one human heart to another.”

Bound by Love and a Zip Code

Nine years ago, my essay “Bound by Love and a ZIP Code,” was published  in the Los Angeles Times L.A. Affairs column.

I regularly read these columns and am always surprised/delighted/amused by the many different ways we search and find, or lose, love.

You may find it surprising that for quite a while I really didn’t think I had a romantic story to tell. In fact, it took me a while to see what was in front of me the whole time — the way my husband and I met and fell in love was pretty extraordinary.

This week, I’m pleased to share the essay with you. If you haven’t read it before, you can click here to read “A boundless love contained in a single ZIP code.” (Note – the digital title varies slightly from the in-print title.)

The Bodyguard

I wanted the first book I read, start-to-finish, in 2023 to be a book I knew I would adore. 

That book was Katherine Center’s The Bodyguard

Last year, I was lucky enough to win an advanced copy through a Goodreads Giveaway. I already knew the main characters, the plot, the setting. 

Did that diminish this year’s reading in any way? Absolutely not. 

(By the way – I bought the hardcover version of The Bodyguard from Ms. Center’s favorite local independent bookstore because she signs them!)

Did I find this second read of The Bodyguard enjoyable?

Definitely!

Was The Bodyguard the reason I stayed up later than planned just so I could read one more chapter?

Yes indeed.

Here are just a few of my favorite passages:

“People who want to be famous think it’s the same thing as being loved, but it’s not. Strangers can only ever love a version of you. People loving you for your best qualities is not the same as people loving you despite your worst.”

“Was I lovable? I mean, are any of us really lovable if you overthink it?
“It was tempting to chicken out.
“But then I thought of Jack going bwok, bwok, bwok, and then I wondered if having faith in yourself was just deciding you could do it — whatever it was — and then making yourself follow through.
“So I decided something right then: Every chance you take is a choice. A choice to decide who you are.”

“I kept pushing. ‘You can’t control the world — or other people. You can’t make them love you, either. They will or they won’t, and that’s the truth. But what you can do is decide who you want to be in the face of it all. Do you want to be a person who helps —or hurts? Do you want to be a person who burns with anger —or shines with compassion? Do you want to be hopeful or hopeless? Give up or keep going? Live or die?”

“Maybe love isn’t a judgment you render —but a chance you take. Maybe it’s something you choose to do —over and over.
“For yourself. And everyone else.
“Because love isn’t like fame. It’s not something other people bestow on you. It’s not something that comes from the outside.
“Love is something you do.
“Love is something you generate.
“And loving other people really does turn out, in the end, to be a genuine way of loving yourself.”

It’s Not the Final Answer

“After a year and a half of talking with one doctor after another, it was Dr. W, a rheumatologist, who explained my mystery illness.

‘It’s an autoimmune disease called Undifferentiated Connective Tissue Disease. UCTD,’ he told us.

My husband and I had no idea what that meant except for one thing. My gut instinct told me that not knowing those letters, not immediately recognizing the name Undifferentiated Connective Tissue Disease, was a good thing. If UCTD was truly bad, it would have been a familiar term. A term you hear about a lot in relation to walk-a-thons and fundraisers. Multiple sclerosis. Muscular dystrophy. Even if I didn’t know the specifics of those illnesses, I knew their names. I knew they were complicated. UCTD sounded okay.”

The paragraphs above are from my personal essay, It’s Not the Final Answer. I’m pleased to share that my essay was selected for publication in Please See Me, Issue #12: Diagnosis. You can read the essay in its entirety by clicking here.

Bomb Shelter

I don’t think I can say enough good things about Mary Laura Philpott’s memoir Bomb Shelter: Love, Time, and Other Explosives

Back in February of 2020, I had written a blog post about her first collection of essays, I Miss You When I Blink. (In case you missed it, you can read that blog post by clicking here.) In that post, I wrote: “And I got lost in this story. I saw myself on page after page.”

I feel the same way about Bomb Shelter. It’s not just what Ms. Philpott is writing, but how she’s writing it — the words she has chosen to express herself. 

My copy is full of sticky notes and marked passages. I’ll share a few of my favorites:

“Every joy, every loved one, every little thing I got attached to, every purpose I held dear — each one was another stick of dynamite, strapped to the rest.
“The longer I lived, the more I loved, the larger this combustible bundle grew. I walked around constantly in awe of my good fortune and also aware that it could all blow up in an instant, flipping me head over heels into the air, vaporizing everything.”

“The nursery song I sang to my baby — ‘never let you go’ — had been a lie. But it wasn’t a cruel lie. It was a hopeful one. It was a lie to me as much as to him. It was a loving work of fiction to let myself enjoy those warm, snuggly evenings without thinking about the fact that one of those times would be the last time.”

Everybody has something. That’s one of the things John and I began saying to the kids. We meant it as a way of normalizing what our son was going through — like, hey, nobody’s without some medical adventure. Having a body means taking care of yourself in all the usual ways, plus whatever extra way might be required by your particular thing. You go to the doctor. You take your medicine. You do what needs doing, so you can go on with your life.”

“If I can scrape up some evidence of a thing made beautifully or a gesture made kindly, then I can believe, for a few seconds, that this world is careful and kind. And if I can believe that, I can believe it is safe to let the people I love walk around out there. It’s my own attempt at foresparkling, seeking out hints of good, even planting them myself, so I can believe there’s more good to come. It might all be superstition, just mental magic, but why not try?
“So I say yes for things that offer some pleasure. Yes for people who choose to be friendly. Yes for any glimmer of light through all the darkness. I mean that yes. I need it. Seriously.”

“It’s a glass-half-empty, glass-half-full kind of thing: Better to believe the world is at least half-full of decent intentions than to focus on how it’s also half-full of assholes.”

“It’s goofy, I guess, to think of myself as a still-growing child, but it’s also thrilling to remember that although it has been my job for so many years to help my children grow up, I am still growing up, too. I am becoming someone, still and always. I enjoy setting my own timing for a reset every year. It helps me look at life less like one ending after another and more like a series of starts.”

“It’s true: There will always be threats lurking under the water where we play, danger hiding in the attic and rolling down the street on heavy wheels, unexpected explosions in our brains and our hearts and the sky. There will always be bombs, and we will never be able to save everyone we care about. To know that and to try anyway is to be fully alive. The closest thing to shelter we can offer one another is love, as deep and wide and in as many forms as we can give it.”