Disability Pride Month Reading

July is Disability Pride Month, and Sunday, July 10th is Chronic Disease Awareness Day

For me, July also marks  the anniversary of “the day,” — the day I went into the hospital with a swollen left calf, unable to walk, unable to stand, without knowing that was only the beginning of my life with an invisible disability. (Twelve years ago this month.)

After I became ill and was finally diagnosed, I went looking — for help, for support, for community — in books. I didn’t find much.

Since then, however, my library has expanded and includes books that speak to my life with an invisible disability. Not necessarily because the author also has an autoimmune disease or chronic pain in her left leg. In fact, the specific details can vary widely, yet it’s the emotions we share. I read these books, and feel understood, and heard, and seen. And when you’re living with a medical condition that isn’t easily understood — by those closest to you and those treating you — that sense of community is huge. 

So this week, I’d like to share just a few books in honor of Disability Pride Month and Chronic Disease Awareness Day.

Bravey by Alexi Pappas. The specifics are very different (she’s an Olympian after all!), but the emotions are similar. My copy is full of sticky notes. (You can check out my blog post, “Trying To Be a Bravey,” by clicking here.)

The Things We Don’t Say: An Anthology of Chronic Illness Truths edited by Julie Morgenlender. I’m proud to say my essay, “Chronic Contradictions,” is included in this incredible collection. In this anthology “forty-two authors from around the world open up in fifty true stories about their chronic illnesses and their search for answers, poor treatment by doctors, strained relationships with loved ones, self-doubt, and more.” (You can read an earlier blog post written shortly after the anthology was published by clicking here.)

Chronic Resilience by Danea Horn. I don’t remember how I discovered this book. I just know I felt so lucky to have found it. I have read it more than once, and even wrote the author a fan letter! I highly recommend it. (You can learn more about the book here.)

The Pretty One by Keah Brown.  I found this book at Target and was captivated by the author’s smile and joy that is so evident on the front cover. (I wrote a blog post about Ms. Brown’s book and several of my favorite passages. You can read it here.)

No Cure For Being Human by Kate Bowler. Incredible writing. Beautiful, profound, and funny too. (This book I read fairly recently, back in April. You can read my blog post, “No Cure For Being Human,” by clicking here.)

Readers, any recommendations? I’d love to hear about books you have read that you think those of us with disabilities and/or chronic diseases would enjoy reading.  

Thinking Pink Means Reading Pink

It’s June 23rd which means it’s National Pink Day. A day to celebrate “all things pink.” 

Some might think of the color pink and think of baby girls or cotton candy. 

Some might think of the singer and songwriter.

And others might think of Elle Woods and Legally Blonde

I learned about National Pink Day and thought of books. 

Here are some of my favorite pink books.

Beyond the Diaper Bag created by Megan Bekkedahl and Melaina Lausen

This book has a special place in my heart. It was the first time one of my personal essays (“5 Things I Wish Every Parent Knew Before Sending their Child to Kindergarten”) was published in an anthology.

Swapping Lives by Jane Green

A novel I read years ago that takes you on the journey of “What if…” What if you could imagine a different life? What if you stepped into another woman’s life?

The Victoria’s Secret Catalog Never Stops Coming and Other Lessons I Learned From Breast Cancer by Jennie Nash

This book showed me in a big way that authors publish books that are collections of personal essays. I read this book and thought, “Yes, it can be done. Yes, I can write about my autoimmune disease.”

The Pretty One: On Life, Pop Culture, Disability, and Other Reasons to Fall in Love With Me by Keah Brown

Another book that has served as inspiration, giving me a nudge, encouraging me to write my story. 

In case you missed it, you can click here to read my earlier blog post, “Connecting With The Pretty One.”

The Authenticity Project by Clare Pooley

I checked this novel out of the library but enjoyed it so much I bought my own copy to add to my personal library collection.

Keep Moving: Notes on Loss, Creativity, and Change by Maggie Smith

I won an advance reader’s edition from a Goodreads Giveaway (the only time I have won from the many giveaways I have entered). You’ll find my copy is full of sticky notes marking the many encouraging statements. A book I’ll return to again and again.

Chronic Resilience by Danea Horn

I consider it an act of serendipity that I discovered this important book. It is a must-read for anyone living with a chronic illness. (I have read it more than once and emailed a fan letter/thank you note to the author!)

What about you readers? Any favorite pink books? 

Why I Read

I bought myself a present. The print you see in the above picture created by one of my favorite novelists, Katherine Center.

I love this quote, because I agree whole-heartedly.

There are so many reasons to read. And those are the same reasons I write.

This week, I thought I’d take inspiration from Ms. Center and share a book I have read for each of these statements.

Read for Fun.

This one is easy. I recently finished Abbi Waxman’s The Bookish Life of Nina Hill. The pages flew by as I read this fun, delightful novel. And now I want to read more of Abbi Waxman’s books.

Read for Pleasure.

Beach Read by Emily Henry was pure pleasure. Just one of those novels I disappeared into and stayed up later than I probably should have just to read one more chapter.

Read for Comfort.

A disclaimer – one of my essays is published in The Things We Don’t Say: An Anthology of Chronic Illness Truths. What most strikes me about this valuable anthology is the universality of the feelings written about. The medical conditions may be different, but the emotions are the same. And it is so comforting to know there are others out there who “get it.”

Read for Wisdom.

Anne Lamott’s Bird by Bird may be one of the most popular books about writing. It’s a book I have read multiple times, and each time I find some new nugget, something that strikes my fancy and warrants a sticky note. 

Read for Insight.

Michelle Obama’s Becoming. Honest, moving, inspiring. And what makes it even more special is that one of my best friends gave me this book about one of the best role models out there. 

Read for Hope.

I discovered Danea Horn’s Chronic Resilience: 10 Sanity-Saving Strategies for Women Coping with Stress of Illness in what can only be described as an act of serendipity. I have read this important book more than once. It is a book that I highly recommend to anyone living with a chronic illness.

Read for Adventure.

Scott Kelly’s memoir, Endurance: A Year in Space, A Lifetime of Discovery is a true tale of adventure. It’s highly unlikely I’ll travel into space, let alone live onboard the International Space Station for one year. Yet, by reading Mr. Kelly’s memoir I could get a sense of what it would be like to be that far away from planet Earth.

Read for Laughs.

Matilda by Roald Dahl has a special place in my heart. I always read it to my fourth graders – a little bit after lunch each day. Once we finished the novel, we’d watch the Danny DeVito film. (A touching side note – my students thought I resembled Miss Honey. I took it as a sweet compliment.) And I’m so glad my son enjoys it too. We’ve read this book many times. And we laugh at all the same parts.

Read for Possibilities.

Kicking in the Wall: A Year of Writing Exercises, Prompts, and Quotes to Help You Break Through Your Blocks and Reach Your Writing Goals by Barbara Abercrombie should be on every writer’s desk. So many great prompts to use for 5-minute writing exercises. And I never know when I start writing which of those prompts, which of those “exercises,” will actually be the seed for a whole new essay.

Read for Joy.

There is a new edition out, with a beautiful cover, for Katherine Center’s Everyone is Beautiful. It was the first novel I read by Ms. Center. It was one of the few books I can say had me hooked from the first sentence. And I knew after reading this book, I would read everything and anything else this author wrote.